In the past year or two, we've seen the launch of dozens of studies analyzing the genomes of thousands of people with autism. The data — at least in aggregate form — is incredibly valuable to researchers. The participants, on the other hand, are almost always kept in the dark about their own DNA.That lack of data disclosure is ethically worrisome to many researchers and participants, according to a comprehensive survey published 17 March in the European Journal of Human Genetics.The prevailing consensus among bioethicists is that the participants of a study should be given genomic information when it has a clear effect on their health or well-being.But the survey authors argue that it may not be possible — or appropriate — to apply the same guideline to all genomic studies.Read more at...SFARI, April 2010.