I was cranky tonight after the evening news mentioned Jenny McCarthy’s crackpot “green the vaccines” rally in DC this weekend. She and Jim Carrey are scheduled to appear on Good Morning America tomorrow. Ugh.
Orac, thankfully, snapped me out of my funk, by posting an (albeit mild) counter-response: an open letter to Congress on immunization policy written by a slew of doctors and public health experts. The money quote (emphasis mine):
Well-designed scientific studies are the only valid method of demonstrating medical cause and effect. In contravention of this fundamental principle, beliefs not based on science have led increasing numbers of parents to choose not to immunize their children. The implications of this choice are profound.
For those who don’t know, McCarthy, whose son is autistic, is now the high-profile spokesperson of those who believe that vaccines are the cause of the rising prevalence of autism in the U.S. On March 9, she distributed a letter online urging parents of children with autism to call the White House and “demand” the resignation of CDC director Julie Gerberding, who has led the CDC, in McCarthy’s words, “during a time when the autism epidemic has only gotten worse.”
Though the idea of an autism “epidemic” originated several years ago, it’s received massive media attention in the last year thanks to celebrities like McCarthy and Don Imus and the 4,800 families who are suing the government in federal “Vaccine Court.”
It’s true that autism diagnoses across the world have skyrocketed in the past few decades. Before 1990, the reported autism prevalence in America was 4.7 out of every 10,000 children; it’s now 60 per 10,000. The anti-vaccination gang says this correlates exactly with the rise in the number of childhood vaccinations, which went from 10 in 1983 to 36 in 2007. But scientists say the rise in autism diagnoses is instead a result of a broadened definition and better awareness of autism spectrum disorders in the medical establishment.
Don’t let their cute children fool you: The Antivaccers are a scary bunch. If Jenny and Jim have their way, the anti-vaccination movement will bankrupt the Vaccine Compensation Fund, start suing the pharmaceutical companies who manufacture the vaccines, and cause a public health disaster. Here’s hoping for rain in D.C. this weekend.





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June 4, 2008 at 6:32 pm
Autism Blog - Green Our Vaccines - the reality | Left Brain/Right Brain
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June 4, 2008 at 11:12 pm
Mom of 2ASDboys
Your article is incorrect. I was in attendance today, I have two Autistic boys, I heard the message of the rally, you did not. WE ARE NOT ANTI-VACCINE! We want safer vaccines and a safer vaccine schedule. It’s not too much to ask. Additionally, I have yet to see a published, *unbiased* double blind study either proving or disproving the vaccine/autism relation. Please feel free to publish that when (and if) it ever happens. In the meantime, how many children will receive vaccines with unsafe and unnecessary additives?
June 4, 2008 at 11:17 pm
Mom
We fight Autism every day. What makes you think we are afraid of rain? We have been to hell and back, you underestimate the strength of the Autism community.
June 4, 2008 at 11:31 pm
mea
autism is real. nobody know what causes it…so why are you so against MOMS and DADS (who have to live with the results of it) trying to do something.
June 5, 2008 at 1:00 am
HCN
What I don’t understand, mea, Mom, and Mom of 2ASDs… is why you are all so much against parents like myself. Here I have a kid not only who has had seizures (as a newborn, before he had any vaccines, and and after being weaned from anticonvulsants he had another seizure while suffering from an actual disease, which may be what caused the permanent brain damage)… and who also has a very severe genetic heart condition.
Why do you hate the other kids? The ones with suppressed immune conditions due to cancer, transplants and genetics? These are the kids that depend on herd immunity, like these boys:
http://www.timesonline.co.uk/tol/news/uk/article1055533.ece
Why do you want to expose kids with genetic cardiac and pulmonary disorders to diseases like pertussis and measles?
I hate to break it to you guys: but there is actual science to show that genetics can contribute to the probability of a child having epilepsy and/or autism. (it turns out in our family there is a history of migraines, which are not that much different than seizures)
Where is the real science that shows that the MMR is more dangerous than measles, mumps and rubella? Where is it shown that the MMR causes more damage than the 1 death in a 1000 cases and that one normal kid out of 5000 will come out severely neurologically damaged to the be considered mentally retarded (along with a few who are blinded, deafened, etc)? Where is the peer reviewed journal paper showing that the DTaP is worse for an infant than diphtheria, tetanus and pertussis? Knowing that tetanus is everywhere, and is called “lock-jaw” for a reason, and that in the USA about a dozen babies still die from pertussis each year.
Stop bitching and moaning about how tough it is for yourself! Stop playing the blame game and work to get better physical, speech and educational therapies for your kids. Value them as the kids they are!
And don’t you dare tell me I don’t know what it is like. Go back and read my first paragraph.
June 5, 2008 at 7:26 am
Mom of 2ASDboys
HCN- I wouldn’t dare to speak from your perspective but I can only speak from mine. Both my children are fully vaccinated because of the greater health good, I never once advocated that people not vaccinate, quite to the contrary– PLEASE vaccinate but do so with safe vaccines and a safe schedule. It only takes and extra 2 months to space vaccinations out, the doctors aren’t terribly worried about waiting an extra month past my son’s 4 year appt because I couldn’t get in to see him even if I wanted to. We couldn’t even get an appt until “A”’s 4year 2month birthday. In that extra two months is he going to spread measles?
I do not deny a genetic part of Autism, I have two boys on the spectrum who received vaccines differently and they have different types of Autism. I truly believe in a genetic predisposition. This is why I have been a participant in Kennedy Kreiger and Dr Landa’s sibling study since my youngest was born. I want to help find the ‘why’.
I attended the rally because all the parents I know do not realize that what is published is a RECOMMENDED vaccination schedule. Your child does not have to receive 4-8 shots (combos included) in one visit. Get the vaccinations in, but give the body time to recover from one before giving another. Fighting a live virus is a huge body burden and from your experience you know that. Additionally, I want parents to ask for titers. Let parents find out without a doubt that their child is fully immune to the diseases for which they are given vaccines. Maybe they only need one shot or one shot and one booster, maybe their child is never fully vaccinated (this is true of 3-5% of the population). Maybe if we had that knowledge, maybe if we knew some children could not be fully vaccinated then maybe we can help parents who have immuno-suppressed children like yourself. Parents don’t even know they can ask for a titer check!
The only last thing I want to add is that the Autism community is also asking for research to find out if combination vaccinates are safe (MMR, DaTP), are they any more or less safe than receiving the vaccinations broken out in separate shots? I want to know too! “C” received his diagnosis at 2.5 years, “A” received his diagnosis at 3 years, it is too late for our family. The damage is done and we have to now focus on treatment and recovery (full or partial). When I walk for Autism Research (to beg and plead for more funding for research and more funding to help parents receive OT/PT/Speech service) I walk for my family. When I walk for vaccine reform I walk for everyone else’s family– SAFE VACCINES– SAFE SCHEDULE– FULL DISCLOSURE. It’s not too much to ask.
June 5, 2008 at 7:50 am
Mom
HCN-
I am sorry you have a special needs family, are our seizures any less important than ours because they were not caused by vaccines? I applaud the fact that you had knowledge about your child’s condition as a newborn and before vaccinations. I am even more amazed that you were able to stop the vaccinations that occur within minutes of a child’s birth. My children received their first shots (6) before they were an hour old. Try as I might, I could not stop them. I wasn’t even given the consent forms until after I came out of anesthesia and it was already done (both births by c-section to save my children).
Information about the immune system has come a long way in the fast few decades hasn’t it? I am so glad you are able to benefit from all that prior knowledge from the medical community and I hope that the medical community is continuing to do research to help your child. I am glad that they didn’t say– here is your diagnosis, ok then, bye! I am guessing they you probably had 3-4 referrals in hand before you ever walked out the doctors office. I did not. I got- your child has Autism, it sucks, there is no treatment, there is no cure. Do I not have the right to ask for research so that one day there might be a treatment or, dare I say it, a cure? Am I not allowed to reap the benefits of prior knowledge and medical community support?
My child is amazing, he has far surpassed expectations. That does not mean that your child is less amazing. It does not mean that I am special, it does not mean that you are not special.
June 5, 2008 at 10:54 am
Tsu Dho Nimh
Momof@ASDBoys – You say, “Additionally, I want parents to ask for titers.”
Do you know what you are asking for? FOR EVERY VACCINE AND AFTER EVERY VACCINATION you want to come back 6-8 weeks after the vaccine and let me take enough blood from your infant to check the antibody levels? Taking blood from an infant or toddler is not easy, and it is not painless. In the case of a toddler, it often is dangerous for the lab tech because they fight back. I have been bitten, kicked, scratched, and even stabbed with my own needle by toddlers who were not cooperating.
These are not speedy tests … so you will be sent home while the blood is shipped to a lab that is qualified to do the testing. Then if the titer is not at a level that is likely to be protective, you will then have to come back for the booster, then back in 6-8 weeks for yet another blood-letting session and waiting for the lab results.
How much blood are you willing to have me take and how many needless wounjds do you expect me – the lab tech – to inflict on your child?
June 5, 2008 at 11:09 am
Tsu Dho Nimh
And antibody titers are not free. Your insurance might not cover the cost of the testing because the child is not ill.
June 5, 2008 at 11:13 am
Mom of 2ASDboys
So better to poison the child with un-necessary vaccines than do a blood draw? One blood draw has saved my oldest son 20 shots, his anti-body levels are through the roof. He is fully vaccinated with only initial vaccines, he does not require boosters until well into his twenties. Why would I give him those 20 shots when I don’t have to? Why would I knowingly give him shots containing mercury, aluminum, ether, formaldehyde, etc, why would I overburden his already crippled immune system? Taking blood from a young child is not easy, I know because I have had to help my kids through their blood draws. In my state a blood draw is required at 1 year to test for lead. Additionally, blood tests are done post Autism diagnosis also. Maybe we should do away with those tests too because it is just too difficult.
PS- I find it appalling that as a phlebotomist you use the term “blood letting”.
June 5, 2008 at 11:22 am
Tsu Dho Nimh
“My children received their first shots (6) before they were an hour old.”
HUH? What vaccines are you talking about. The only vaccine given at birth is Hepatitis B.
June 5, 2008 at 2:16 pm
Tsu Dho Nimh
“better to poison the child with un-necessary vaccines than do a blood draw”
Your assumption that vaccines are poison has not been clinically substantiated.
“Why would I knowingly give him shots containing mercury, aluminum, ether, formaldehyde”
The substances you fear are either not present (thimerosol), present in amounts far less than normal environmental exposure (the “aluminum” of which you speak is the alum adjuvant which also found in those “natural crystal” deodorants, pickles, and lemon meringue pie, and the formaldehyde content of organically grown pears is higher than the allowed amount for particleboard and floorng), or not in the form you think it is (the “ether” is not the ether of anaesthetic fame, it’s a totally different molecule).
How do you know his titers will stay high enough to be protective? “Sky high” doesn’t always last, and it’s often variable from lab to lab. How were they tested, high were they? How often do you plan to retest him?
I am not a phlebotomist – that is a person who has had on-the-job training for collecting blood. My full name tag title would be: Tsu Dho Nimh, B.S., MT(ASCP) EET and it takes 4 years of college (Microbiology and Chemistry), a year of post-grad classes and training in the clinical laboratory procedures like hematology and blood banking, and then a year of electronics to collect all the initials.
Yes, I say “blood-letting”. So what? You call vaccines “poison”.
June 5, 2008 at 4:47 pm
lswartz
Titers are a great idea. If vaccines work then they should be immune after the first shot, right? The boosters are a blanket “just in case” so why give them if they aren’t needed. Tsu Dho Nimh said “The substances you fear are either not present (thimerosol), present in amounts far less than normal environmental exposure (the “aluminum” of which you speak is the alum adjuvant which also found in those “natural crystal” deodorants, pickles, and lemon meringue pie, and the formaldehyde content of organically grown pears is higher than the allowed amount for particleboard and floorng), or not in the form you think it is (the “ether” is not the ether of anaesthetic fame, it’s a totally different molecule).”
Can you tell me where that info come from? The difference between the alum adjuvant in crystal deodoran & formaldahyde in organic pears is that they aren’t injected into the body.
June 5, 2008 at 5:43 pm
morganlefay
HCN
I have to say I was suprised and continue to be suprised by the vitriol that is spouted from many people in the scientific community regarding this issue.
I have read some of your blogs, you seem like a well educated gal, I read your article on regressive autism, and while I did find it interesting, I wanted to point out someting that it didnt cover – kids like my son.
and HCN I am sorry to hear that your child has serious health issues. There is nothing worse to a parent than having a sick child and constantly worrying about their future.
and to be clear… before June 25 2005 I didnt believe much of this either.
at 18 months old, my son was playing with other children, had more words than children 1 year older than him, was so empathetic that his day care told us they were shocked how he would go over and try to comfort other children that were sad saying they had never seen anything like this, he had original speech, pointed, smiled, fantastic eye contact, and was actually teaching other children in his daycare how to sign for certain things (milk and eat). Then he had his dpt/chicken pox shots. He got a horrible fever, was covered with oozing open sores, and started to have episodes where he would shake, lips turn blue and his hands would turn purple and he would get deathly pale. We have medical records to document the numerous calls and dr. appointments we went to saying our son has been acting different since his vaccination, more agressive, zoning out, losing language, more babbling, his daycare commented on it as well. He started getting sick ALL the time, the “episodes” got worse and worse. The school called me to say they though his hearing my have been affected after his illness as he stopped responding to them consistenly. By 22 months we were contacted by the daycare who 4 months before told us how amazing his language and social skills were – they recommended we get him evaluated by the state as they were concerned about his marked regression after his illness. He was diagnosed as dev. delayed and then with autism.
After speaking to my pediatriton and going over the reaction my son had, as well as medical records, and family history (What we discovered is that my family has a history of vaccine sensitivity. My brother didnt walk for 4 days after his polio vaccine at age 2, my mother in law is allergic (yes allergic and I do know it is rare but it is documented) to tetnus shots) and before and after photos – I was adviced by my pediatrition and GOT A NOTE that we should not vaccinate our son any more as she believed he had an allergy to vaccines.
Does that make me a criminal? Are you advising me even after my child’s dr. said that if we vaccinate my child again – his reactions could be much more severe, seizures possibly death…I should keep going so the herd immunity can keep going? My childs death would be acceptable to you?
I marched yesterday because I KNOW that the dpt/chicken pox caused my son’s autism due to a genetic predisposition in my family – that there should be testing for genetic predisposition of vaccine allergies.
I marched so no other parent has to watch their child be ill for over a month, covered in sores, screaming in pain the middle of the night writhing in their arms due to a vaccine they had an allergy to. No child should have to indure that.
I marched because I think vaccines should be spaced out. We survived on getting 10 vaccinations when we grew up. Then we added in all these other vaccines. And no one stopped to think to test if it was a good idea to put 2 or 3 or 5 jabs of 5 different viruses and/or bacteria into a child at the same time. there is NO testing on that, no one knows if that does cause any kind of reaction.
What we do know is that autism rates are rising rapidly every single day.
The studies on both sides of this equation and yes I do go to pub med and read them – could be and have been debunked siting faulty science on both sides of this equation.
It is time to stop fighting and to get a real study together. A study that isnt funded by Pfizer, or Johnson & Johnson – and on a much larger scale that what has been done.
Autism is getting worse and worse, I march so that 20 years from now, there will be no need to because autism will be gone.
Im not going to even entertain that I can sway you on your beliefs, you know what you know and obviously that is all you will ever consider…BUT, I do hope, that you will take a second and realize that regressive autism does exist, its not kids who had a few words, and didnt really socialize that much.
I had a vibrant loveing, giggly, wordy, sassy, happy boy. Who was into everything and loved his family and friends, pointed and chatted so much that we used to say “Its daddy and mommys turn”.
Then he was gone.
June 5, 2008 at 5:55 pm
Jo
How can you say these things. How many drugs have been recalled because someone did not do extensive research on the effects of these drugs. The same with food FDA is supposed to inspect and make sure our food is safe for us but how many times do we here of food being recalled because someone did not do their job
June 5, 2008 at 6:30 pm
Mama2unvaxedson's
It is so sad that people are still so narrow minded. I am a well educated person with son’s who have not been vaccinated as they are not safe. There is ingredients in vaccines that are commen sense things that cant be good for your body . I would rather take the risk of my son’s getting something that can be cured then getting asd and never living a normeal life again .
June 5, 2008 at 9:16 pm
MomFightingASD
I love how you used the term 60 per 10,000 do you think that makes it look different. It is 1 in 150 if you take out girls autism affects 1 in 94 boys and it is rising rapidly it is an epidemic caused by our government the CDC and all the drug companies who want to bleed us dry. Look at the facts I had a beautiful robust laughing fun loving son who was sweet and caring never cried yelled our screamed then we went for his two year checkup he received at vaccines and got sick fever earaches coughing and our lives changed forever now he is in his world and has regained speech but he still spind and flaps head bangs and tantrums. My daughter started with that after her 3 month visit again vaccines were given and she wouldn’t even breastfeed anymore she runs away and screams hits and bites. All of you with children with other needs have you experienced what it feels like when you are told to find another school for your child. when you are asked not to bring them to church. I have and it sucks and it could have been prevented I hate the CDC and FDA for what they have done to my children and to my family. I want safe vaccines I am not anti vaccine but if you want to continue to inject your children with all these chemicals and poisons tissue from aborted babies and such go for it but when it happens to you all I can say is I told you so
June 5, 2008 at 11:20 pm
mom2Gibson
If you would have only heard what was said at the rally yesterday. We don’t want anyone else to join our club. We were there not only to speak up for what has been done but to keep it from effecting other children as well. We were not their to ask for repayment for our misery and loss of our children to this horrible thing called Autism. So I am sorry if you think that is all we are about because you are wrong. I just hope it doesn’t take someone that is huge in the CDC and FDC to lose their child to autism before things start to be shaken up. We want history to be made and that autism would be that history.
June 6, 2008 at 10:32 am
Jenny Rowe
You obviously do not have your facts straight. You are one of the people who blindly chooses to put faith in a system that has failed you. We all did the same thing, and look at our children. Unless your life has been touched by an autistic child (something unheard of 20 years ago) you will never truly understand.
Open your heart and your mind and realize that we are NOT ANTI-VACCINE.
I hate to say this, but like you wished rain on us, I hope autism strikes you and your family. Chances are, that will happen if the vaccines are not cleaned up.
Good luck to you……”autism” russian roulette is waiting for you.
J. Rowe
June 8, 2008 at 11:14 am
Susan
For those of you who tout that our current vaccine schedule is safe, I want you to stand up, walk to your nearest pediatrician’s office and tell him/her you would like the equivalent of what babies receive in vaccines (based on your weight – not the weight of a small child). Would you be willing to ask for x number of micrograms of thimerisol or any other additive injected into your body for the next 18 months at regular intervals? If you’re not willing to do this, then I suggest you close your mouth and walk away!!
July 17, 2008 at 8:14 pm
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July 18, 2008 at 2:02 am
HCN
Susan said “Would you be willing to ask for x number of micrograms of thimerisol or any other additive injected into your body for the next 18 months at regular intervals?”
That amount of thimerosal would be exactly 0.00 micrograms (see http://www.vaccinesafety.edu/thi-table.htm … see the column that is mostly zeros?). Is that a problem? Unless you have been living in a cave for the past five years you would know that pediatric vaccines no longer have thimerosal. Some vaccines have never had thimerosal. Ms. Jenny likes to blame the MMR, which has been used in the USA since 1971 and has never had thimerosal.
I do go in for my adult vaccines like for tetanus (I am a gardener). That one shot has more thimerosal than all of the pediatric vaccines combined. So in a sense I have completed your challenge. And so has any thinking adult who keeps their vaccines up to date.
Now, here is a thought… how about you go and tell us what real scientific research (not hypotheses!) shows that the DTaP is riskier than pertussis (which still kills about a dozen babies a year in the USA), tetanus (which has about a 10% fatality rate, and since it is soil born, there is not herd immunity for it), and diphtheria (which is a horrible disease that came back in the countries that used to be part of the USSR after it broke up and vaccine program were interrupted).
May 1, 2009 at 2:16 pm
dada
Anti-vaccine-activists claim to protect heir children from the harms of vaccines, but at the same time have no problem with the fact that my children are more likely to be exposed to those children’s measels, rubella, chickenpox, etc. If that logic was sound, then it would also be okay to drive 40mph on the freeway, because it’s safer than going 70. Who cares that it endangers everyone else??
In Africa, children are dying from diseases long eradicated in the U.S. Do anti-vaccineists really want to go back to those days? Of course not, they are happy exploiting the majority, while calling it their duty to oppose vaccines to “protect” their kids.
It is ethically unjust to benefit from the same thing that one critizes as unjust. I believe an anti-vaccine argument when all those loony moms have immigrated to Needle Bad Island, where after two generations everyone has been killed by viral and bacterial diseases.
Anti-vaccine arguments are weak, unsound and irrelevant. This campaign is just another example of what a free society has to tolerate in order to remain free.